Ethan Henry Skaggs
Born Friday, November 17th 2017 @ 1:24 am. Ethan was taken almost immediately to NICU at Texas Health Alliance and transferred very quickly to Cooks Children's NICU Downtown. We were told his diagnosis through a phone call from his Doctor at Cooks before we were even discharged from Texas Health Alliance.
Trisomy 18, a diagnosis that will forever change our world. This is a genetic disorder that is terminal, the end result is always the same. There were options given to us on how to handle his condition and most of them required us to make decisions for him we did not feel was fair to have to do as parents. We prayed non stop for God to make all the choices for us as our hearts would never be ready. We quickly decided to dedicate Ethan to the Lord with all our pastors and close family and friends as quickly as possible. On Sunday, November 19th we were all able to gather together for dedication. Later that evening Ethan's little body showed us he was not strong enough to make it here in this world and I think God's hand was in each moment of our evening. Monday, November 20th Brent and I decided it was best to keep the day intimate with just Brent, myself, Destiny and Colton. We loved on Ethan all day. At around 3:00 pm the Lord called him home. This is not the end but merely the beginning for us. I plan to keep everyone updated on funeral services as soon as they are in place. Your continued prayers are forever welcome and we appreciate all your support and allowing us our privacy as we grieve the loss of our beautiful baby boy.
My blog is a journey through our unimaginable pain, grief and healing. We welcomed Ethan into our world on November 17, 2017 only to find out the diagnosis of Trisomy 18 at birth that would only give us 4 short days with our precious boy. We are learning to live again and find our new normal.
Trisomy 18 awareness
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