Trisomy 18 awareness

Trisomy 18 awareness
Sleep in heavenly Peace

Tuesday, February 6, 2018

The Story of you


The Story of Ethan Henry Skaggs



Ethan was meant to be a part of our family. Was it long enough? Not even in the least. If I could change the circumstances and allow him to be apart of our family for decades I would! There is a place in my heart that is forever empty because of his death. but there is also a space that was filled by his short lived life. "Getting on with life" has been hard, the kids even have good days and bad. One thing that is true, is Ethan has a story, from beginning to end. Each moment is and always will be a part of his story. Here's a little bit of the story of Ethan Henry.


Since Colton was 2 years old I began to have the desires in my heart to have another child, I felt as if our family was missing a little someone, at the time Brent and I did not see eye to eye on this subject. It's true when they say, God's timing is perfect, because I'm not sure what the outcome would have been had Ethan been born 3 years ago. We had been growing closer in our walk with Christ for about 2 years together. Our marriage had been broken and healed many years before but spiritually there was still need for growth. In 2017 Brent and I were in Re|Engage at church learning to grow closer spiritually with Christ and within our marriage. This was honestly such a life changing class for us. We learned about "oneness" and finally began to see the purpose of our marriage. In March Brent took me aside before our friends rehearsal dinner to talk to me. We had been trying to figure out new bedroom furniture for the kids and also trying to sell the old stuff. He told me he finally figured it out. He said "Ok, lets sell Destiny's bunk bed, move her into the room with the balcony, move Colton over to her room and get him a new bedroom set, and lets convert his bed back to a crib". "I'm sorry, what? Why would we put his bed back as a crib"? I asked. "For another baby, lets have another baby"! He said. I was so confused at his comment that I literally did not believe him. I told him not to mess with me because thats just mean! He was not kidding at all! I asked him what changed his mind? Brent has said many time he believes that God speaks to him through through others. He said he felt like God was telling him it was time to add to our family! Lucky for us we had a vacation booked for Mexico to FINALLY have a honeymoon...11 years later!
It didn't take long before we found out we were pregnant with Ethan and we announced this at Easter with our families, then to all our other friends and family on Mother's Day!
I know as years pass my facebook will continue to show when we announced our pregnancy, when we found out Baby E was a BOY, and all the sweet memories in between.It's going to be so hard knowing the anticipation for what we thought would be is no more... here on earth. I wish I could change it, I wish I could do something to make things different so that he could be here and we could watch him grow, go to school, graduate, go to college, get married and watch him with his own family. I wish all the previous mentioned was a part of Ethan's story. But that was not what we were given, I strive each day to try and find normalcy in each moment. I miss Ethan SO much, I wish I could've taken his place and taken his pain for him. I'm not sure why God called him home so early but each moment of his life had a purpose, a plan and as our pastor said he's " Preaching sermons daily" it's all a part of his story!









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